Conversations between women with vulval lichen sclerosus: a thematic analysis of online forums
نویسندگان
چکیده
Abstract Background Vulval lichen sclerosus (VLS) is a common condition. Despite this, there paucity of research investigating the impact on women’s lives. Some women with VLS utilise online forums to discuss their priorities and concerns. This dialogue gives insight into experiences living VLS. Methods We identified most popular public containing discussions between Inductive, thematic analysis was applied 202 posts spanning six-year period. Results Five key themes were identified. Theme 1 pertained difficulties diagnosis. Women experience frequent delays misdiagnosis. They report health care professionals (HCPs) poor knowledge condition some that dismissive symptoms. Upon diagnosis expressed relief frustration. 2 related rationalisation validation experience. desire know why they affected, what caused symptoms gain reassurance. 3 dealt motivation control want triggers flare-up so can limit relapses. self-manage have an active role in partnership HCPs. 4 sharing seeking advice from forums. The lived other valued by fellow sufferers. In particular, are keen try treatments, conventional alternative. final theme social repercussions Sociocultural factors may prevent talking about friends, family feel embarrassed reported relationship breakdown as repercussion disease. Conclusions Improving HCPs regards reduce problems addition, delivering improved education schools taboo attached health. empower talk seek help sooner. Once diagnosed, clinicians appropriate expertise should for be encouraged take managing clinicians. Future include identifying aetiology, flare-ups novel therapies.
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ژورنال
عنوان ژورنال: BMC Women's Health
سال: 2021
ISSN: ['1472-6874']
DOI: https://doi.org/10.1186/s12905-021-01223-6